When One Door Closes, Another Opens

One door is closing for our little family. However, another one is opening. We will be leaving our much loved two-story house on Saturday. It was nearly nine years ago that we moved into our current home. This house is cozy and it has a lot of character. Unfortunately, it is not very handicap accessible. Likewise, we have begun to outgrow it. So, for the last month we have been loading our lives into boxes. It is amazing how much stuff can accumulate over the course of several years.

This house holds so many good memories. It was the first house that Amanda and I shared as husband and wife. It has kept us warm in the winter. It has sheltered us from the storms of life. This house has been a retreat from the world around us. It is where we welcomed Baby Boy. He will be two years old in December. He took his first steps through these halls. He spoke his first words in these rooms. When we leave on Saturday, we will unpack our boxes and breathe new life into a much bigger house.

Our new house will be a place to create new memories. Likewise, we plan to add on to our family. Our house will become a home just like our existing house. I am excited to see Baby Boy running through the halls while opening each new door. There are lots of closets, so he will have many new nooks and crannies to explore.

Turning over the keys to this house will bring mixed emotions. However, I can’t wait too see what the future will bring. God has blessed us and I know He will continue to do so. Come and see us sometime. We will leave a light on for you.

Toilet Cucumbers

Having a toddler is a learning experience. Baby Boy is always on the go when he is awake. I love his sense of wonder and his willingness to try new things. However, I have learned to be cautious when he is around, especially when he tries to hand me things.

I am now the keeper of half-eaten bananas, empty applesauce pouches, and anything else he decides to hand me. Keeping my mouth closed when Baby Boy is around is a good idea. This is because he likes to share his food with me. I guess he thinks I am a baby bird that needs to be fed. For instance, yesterday, he was eating cucumbers. This is a vegetable of which I am not fond. However, he came running towards me with a slice of cucumber and jammed it into my mouth.

This is where I must tell you that Baby Boy has also recently discovered how much fun it is to play with the toilet seat in the bathroom. He loves to open and shut it. Likewise, if it is up he has been known to drop things in the toilet. It doesn’t matter what it is, he’ll dunk it and then retrieve it. We try to keep the bathroom door shut when he is on the prowl. However, he is now tall enough to open the door.

Yesterday, when he was snacking on cucumbers he made a trip into the bathroom. I was blissfully unaware of this, as I was getting ready to leave the house. As I noted above, he came running towards me with a slice of cucumber and jammed it into my mouth. I had no time to react! It went straight in and I swallowed it after a couple of quick chews. This is when I was informed by Amanda that Baby Boy had just come from the bathroom.

I am trying to avoid thoughts that it had been dipped in the toilet, but I don’t know for sure. All that I know is that I went to bed last night with a bad stomachache. Fortunately, it subsided by this morning. I guess I am immune to just about everything now. Who wouldn’t be after eating a toilet cucumber?

Time

Baby Boy had his first trip to the beach today. Amanda and I had originally planned to spend more time on the water while on vacation. I would have enjoyed laying on the beach reading all week. However, the weather didn’t cooperate the first few days. Likewise, soon after we arrived in Panama City Beach we found that there are not many easy access points out to the beach for those with disabilities.

This does not make me upset. I am used to living in a world that was not made for people like me. It was difficult to get to and from the water today, but I would not have missed it, as I got to watch Baby Boy’s reactions to waves lapping at his feet. I also was able to witness his curiosity as he touched the warm, powdery sand. He often tries to figure things out. It is fun to see the wheels turning in that little head of his.

I think Amanda, Baby Boy and I got a little too much sun today, as we all were a bit tired after we came back from the beach. After washing most of the sand off of us Baby Boy and I settled down for a nap.

One day at the beach was enough for us. I know it was for me at least. I’ll be washing sand off of my body and out of my mouth for the next few weeks.

We still have a couple days in Florida. It has been good to leave the routine of home behind. Likewise, it has been good to connect with family that we don’t get to see very often. It has also been an important reminder that time is fleeting.

Sometimes we let frustrations get the best of us and we lose sight of what is most important. Time is very precious. We shouldn’t waste it by getting hung up on things that do not matter in the long run.

I am glad I got to experience this time with family. We will have travelled over 2,000 miles by the time we get back home on Sunday. However, it was worth it to the see the world through a child’s eyes this week. We’d all be better off if we did this more often.

Day 3 – Montgomery

We woke up in Montgomery, Alabama yesterday morning and decided to just head the rest of the way to Florida. After having driven over 800 miles, we were all ready to be out of the car for a week. We had originally planned to do some sightseeing, but that can wait for another time.

So, we loaded up our Honda CR-V and set out yet again. Just outside of Montgomery, we spotted an outdoor market that had fresh fruits, vegetables, pies, bread, eggs, and all other kinds of goods. They even had some free-range chickens that were roaming the grounds. Baby Boy had fun chasing the chickens around. Fortunately, none of them were peckish. After a short break at the market we were once again on our way.

We finally reached Panama City Beach at around three yesterday afternoon. We had a late lunch at a place on the beach and then headed to join family at our rental house near the beach. It was nice to feel the breeze blowing up from the gulf. It looks like Tropical Storm Claudette has moved on, at least for the most part, although the waters of the gulf were extremely choppy today.

After settling in we decided to go and get some groceries for the week. This was quite an ordeal. I am not one who enjoys shopping, even when the market is empty. We went to two separate stores and both were packed with fellow vacationers. It almost seemed as if everyone was preparing for a disaster to strike.

Being from Northwest, Illinois, I am used to seeing people flood into the stores before an impending snowstorm to grab, milk, bread, and other staples. However, this experience was much different. It was nothing like I had ever seen. I think I’ll steer clear of the checkout lines and just spend the rest of my time at the beach with a good book.

Never again will I do this.

Paducah – Day 1

Amanda, Baby Boy, and I set out on a trip yesterday. I thought I’d chronicle our adventures over the next week here in my blog.

We left our home in Sterling, Illinois last night around 6:00 p.m. Our final destination will be Panama City Beach, Florida. However, for the sake of everyone’s sanity, we thought we’d do the 1,003 mile journey in stages. Last night we stopped in Paducah, Kentucky. We arrived at our hotel just after midnight. Fortunately, Baby Boy slept quite a bit in the car.

On the way down through Illinois there was a lot of road construction, which means there was also a plethora of flashing lights. There also seemed to be quite a few cars broken down along the highway. I am not sure if I have ever seen so many flashing lights in one night. We were even “lucky” enough to have a flashing light in our hotel room!

As I write this I am running on about 3 hours of sleep. That is because in addition to the flashing light blaring in my eyes, I also had a little boy keeping me awake. He has learned how to play peek-a-boo, which he was doing with me. We left his “pack ‘n play” in the car and he slept with me. Amanda had a bed to herself. I could tell Baby Boy had his eyes open, as our room was almost bright as day. When he saw me look at him he’d quickly put his head under the covers and giggle. I love this little boy so much. Anyway, after about thirty minutes of this we both settled down for a restless night sleep.

I think I was elbowed in the face at least ten times. I was also almost disembowled by Baby Boy’s dagger-like toenails. He will be getting these trimmed before we beddown in Montgomery, Alabama tonight.

After our three hour “nap” we were awoken by the rumbling of Harley Davidsons leaving the hotel parking lot. This was just like being at home, as a Harley barrels down our street every morning at 6:30.

I am looking forward to seeing some of the historical sites around Montgomery. Tropical Storm Claudette looks like it has drenched the Gulf Coast, which is where we are headed. I believe by the time we reach the coast on Sunday things will be okay, at least I hope. Stay tuned for more of our travelogue.

Day 2 – Paducah

After a fitful night’s sleep in Paducah, Kentucky, Amanda went and got us all some breakfast of powdered donuts. I believe this was Baby Boy’s first time experiencing those. Powdered donuts always bring back memories of a “staycation” my family and I had when I was a kid.

We stayed at a local hotel for a weekend and did a lot of swimming. Afterwards, we ate powdered donuts by the pool. The Ramada Inn and powdered donuts will forever be linked in my head, but I digress.

Paducah is a town with a lot of nice, little shops. If I was a shopper it would be a great weekend getaway spot. It is also home to Hancock’s of Paducah, which apparently is popular with those who quilt. Amanda and Baby Boy went in for a look while I stayed in the car. The ladies at Hancock’s were nice enough to give Baby Boy a fabric sample. We then went for some sandwiches at Kirchoff’s Deli & Bakery. If you are ever in Paducah, it is worth a stop here. The sandwiches were delicious, and so were the cookies.

After lunch it was time to get back on the road. Our destination for day two of our travels was Montgomery, Alabama. Despite hours of torrential rain, we eventually reached Montgomery last night around eight. After so much travelling, we were all pretty worn out. Well, Amanda and I were anyway. Baby Boy was ready to bounce on the bed, after which he procedeed to vomit. I guess the comedian Ray Romano was right when he said, “Having children is like living in a frat house. Nobody sleeps, everything is broken, and there’s lots of throwing up.” I am ready to see where else this “frat party” takes us.

Hello Again…

It has been quite some time since my last post. I just haven’t felt like writing for some reason. Perhaps, life has just been too hectic, or maybe I just have been a bit lazy. Sometimes, it is difficult to just stop and take stock of the things going on around you.

Life can seem fairly monotonous. Working from home, as I have been doing for over a year, has added to this feeling. Things seem to be slowy getting back to “normal.” I have returned to my office a few days a week. This has brought back some much needed structure to my life. Staying home everyday to work while I am in my pajamas didn’t seem to give me much of a purpose.

A lot has changed within the last year. Baby Boy is now walking and saying a few words, such as “dad.” Being a dad is such a wonderful experience. I have learned a lot about myself. In addition, I think I have learned the entire catalog of “Wiggles” songs. YouTube and Netflix come in handy when you are quarantined.

Amanda and I have been blessed with so much good. Despite, challenges related to health, 2020 was a very prosperous year. It is hard to believe that we are almost halfway through 2021. God has been good to us, even when we have not taken notice.

I look forward to seeing what the rest of the year holds. We will be taking a family vacation to Florida in June. I am excited to see Baby Boy play on the beach. I’m wondering what his reaction will be when he first sees the Gulf of Mexico. I’m sure we will build some sandcastles. Well, I’ll build and he will sit on them halfway through their construction.

Looking at life through the eyes of a little one has given me a new perspective. Everything is new and exciting. Nothing is left untouched. Everything has to be tasted, even cat food. Maybe life is not so monotonous after all. How can it be when every day is a new experience?

Goodbye 2020!

The end of last year brought hope. Amanda and I welcomed a three-day old baby boy into our home. Since this time he has become a part of us. In two days this bright, smiling child turns 1 year old. We will have a party with family. There will be cake, smiles, laughter, and maybe a few presents.

It has been strange raising a baby during a time when the world is filled with such uncertainty. This year has had many ups and downs. However, despite all of this, life has gone on and everyone has remained relatively healthy. There is much for which to be thankful.

Amanda and I have great friends and a loving family. We have a baby who brings us so much happiness on a daily basis. It has been our great pleasure to become his parents. We feel fortunate to have been blessed with the responsibility of raising him and providing for his needs.

God has protected us through times of trial. This year has truly been a struggle at times. The isolation brought on by the pandemic has often been too much to handle. However, life is still good. I will be happy to see 2020 come to a close. I’ll carry the things I have learned this year into the next. One might think that the future looks bleak, and in a lot of ways it does. However, there is a light at the end of the tunnel. I am curious to see what the future holds. As we approach 2021, let us all treat each other with more love and understanding. Everyone has a burden they are carrying. Let’s make time to listen to others.

I recently had a friend reach out to me to share some things that were going on in his life. He expressed to me that he needed others to “do life with.” This is something we all need. The English poet, John Donne, writing in the 17th century, wrote that “no man is an island.” Hopefully, 2021 is a year we can reconnect with each other. Good riddance 2020!

Drip, Drip, Drip…

I seem to be living life one drip at a time these days. Four weeks in to being on IV antibiotics and progress is being made, despite the drip, drip, of time. The wound on my foot has healed, for the most part. However, there are still two weeks of antibiotics to go.

I am dreaming of the day when the PICC line will be pulled from my arm. If all goes as planned this should happen the week of September 21. After that I hope things will get back to normal.

In the time I have been down, Baby Boy has begun to crawl. This has presented some challenges, as I cannot always catch him before he gets his hands in to things where they don’t belong. For instance, he has sampled some cat food, explored the bathroom floor, and played with television remotes. I am hoping he hasn’t purchaed anything from Amazon while I wasn’t looking.

The next two weeks will drip, drip, drip on by and my left foot and my left arm will once again be fully operational. I can then be on full-time baby patrol every evening. I’m sure the cats will appreciate that. I know Amanda will, as she has been working overtime keeping our household running. Without her I’d be lost. She has been wife, mother, nurse, housekeeper, chauffeur, and friend all while holding down a full-time job.

100!

When I started writing this blog back in January of 2019, I wasn’t sure where it would lead. At first my goal was to focus on issues related to my disability. However, my life really isn’t defined by having spina bifida. Therefore, this blog has expanded to be a place where I can share my thoughts on current events, give insights on what living life with a disability is like, and just share humorus observations of the world around me. I hope you have enjoyed following me on this journey.

This particular post will be the 100th post that I have written. I thought in keeping with that, I’d create a list of 100 lessons that I have learned, observations that I’ve made, or opinions that I have formed. Every day there are new lessons to be learned and new experiences to be had. These are just a few of the things I have picked up along the way. Let me know if I have missed anything. Here is my list in no particular order.

  • 100. Never take a hansom cab ride in New York City.
  • 99. Never be afraid to try something new (except for that hansom cab ride in New York City).
  • 98. Holding a grudge against anyone is pointless.
  • 97. God will indeed give you more than you can handle at times.
  • 96. Don’t ever give up. Things will get better. It might just take time.
  • 95. Life is unfair.
  • 94. Anxiety can make you feel like you need to do everything all at once. You actually don’t need to do this. Just slow down and take things one step at a time.
  • 93. The smell of the air just before it rains is one of the best scents.
  • 92. The smell of a baby’s head just after they have had a bath is THE best scent there is.
  • 91. The love that a dog has for its master is one of the purest forms of love there is.
  • 90. Losing someone that you love is one of the most painful things you can ever experience.
  • 89. Working hard to achieve a goal is one of the greatest feelings that you will have.
  • 88. Sitting outside in the winter in a place where there is very little, if any, light pollution and looking up at the stars on a clear night is something everyone should try at least once.
  • 87. Going on a road trip with someone you love is a lot of fun.
  • 86. Dorothy was right, “there is no place like home.“
  • 85. Take time to pray every day.
  • 84. Dirt tastes like dirt (yes, I have tried dirt before).
  • 83. Beets taste like dirt.
  • 82. Walnuts taste like dirt.
  • 81. The taste of soap is not pleasant. (Yes, I have had my mouth washed out with soap. It was at church no less).
  • 80. Cilantro tastes like soap.
  • 79. Eating a bag of peanuts on a warm, summer day at baseball game is one if the most relaxing experiences there is.
  • 78. Take time to listen to the stories that your grandparents tell. I am fortunate that I did. I will treasure these memories for as long as I live.
  • 77. Learn about the things that have happened in the past. You can learn a lot from history.
  • 76. You can never read enough books.
  • 75. Learning to adapt to change is difficult, but it is well worth the effort.
  • 74. Being a homeowner is both a blessing and a curse.
  • 73. It pays to do things correctly the first time.
  • 72. I’d rather have more time to do the things that I want to do in life than to make more money. Time is far more valuable than money.
  • 71. There are still very kind people in the world. Many of them live in the U.K.
  • 70. Listen to your parents. They know more than you do.
  • 69. Do at least one thing you enjoy doing every day.
  • 68. Never pray for patience. God just might answer your prayers in ways you don’t expect.
  • 67. When working with others it is often best to let them speak first. You just might gain some new perspective.
  • 66. Donuts are little bites of heaven.
  • 65. Mashed potatoes are the best food ever!
  • 64. Chick-fil-A is overrated.
  • 63. Fountain Coke at McDonald’s is the best.
  • 62. Hot McDonald’s french fries are the best.
  • 61. The Blues Brothers is one of the best films ever made.
  • 60. Somedays you just have to listen to the Beatles.
  • 59. You will never get everyone to like you.
  • 58. Pancakes made at home are better than you can get in any restaurant.
  • 57. NASCAR is not a sport.
  • 56. Everyone should make a trip to the ocean at least once.
  • 55. Everyone should travel overseas. You will gain a new perspective on life.
  • 54. There is nothing like a good night’s sleep.
  • 53. Spending time in the mountains is one of the most peaceful things you can do.
  • 52. Disney World is overrated.
  • 51. Bacon tastes best when crispy.
  • 50. Cats can indeed be needy (I live with two who are very needy).
  • 49. Sunny days are the best kind of days.
  • 48. Never have your eyes dilated on a sunny day.
  • 47. You can’t properly eat Oreo cookies without a glass of milk.
  • 46. Getting an unexpected package in the mail is better than gifts on Christmas Day.
  • 45. No one has ever sang the National Anthem better than Whitney Houston.
  • 44. No one’s instrumental version of the National Anthem has been better than Jimi Hendrix’s rendition from the Woodstock Festival in 1969.
  • 43. September is the best month when it comes to weather, at least here in Illinois.
  • 42. Rollercoasters are not fun!
  • 41. There is no ceremony quite as somber as the “changing of the guard” at Arlington National Cemetery in Virginia.
  • 40. Ken Burns knows how to make a documentary film better than anyone else. If baseball doesn’t start soon I might have to dive into his 23-hour epic on the sport.
  • 39. Don’t ever try smoking.
  • 38. Tell the people you love how you feel while you still can.
  • 37. Sometimes you just need to eat a big, greasy, cheeseburger.
  • 36. It is never too cold to eat ice cream.
  • 35. Read to your kids when they are young.
  • 34. Walter Payton is the best football player I ever saw play the game.
  • 33. Hot dogs should never be eaten with ketchup.
  • 32. Thanksgiving is the best holiday.
  • 31. Christmas becomes less fun the older you get. However, I suspect this changes once you start having your own children.
  • 30. One of the best sounds you can hear is a baby’s laugh.
  • 29. Many of the best things in life are free.
  • 28. Treat others the way you would like to be treated.
  • 27. A soft answer often turns away wrath.
  • 26. Sometimes it best just to remain silent.
  • 25. Autumn is the best season.
  • 24. Always apologize when you are wrong.
  • 23. Michael Jordan was the best basketball player I have ever seen play the game.
  • 22. Don’t argue about politics on social media.
  • 21. Forgive others when they wrong you.
  • 20. Don’t pour gasoline on a fire.
  • 19. Voting for the lesser of the two evils still brings you evil.
  • 18. Finish your work first then you can enjoy your play all the more.
  • 17. You often get what you give.
  • 16. Cynicism isn’t always a bad thing.
  • 15. Always finish what you start.
  • 14. Let your yes be yes and let your no be no.
  • 13. Family is important.
  • 12. Steak is best when cooked medium. Anything else and you cook the flavor out of it.
  • 11. Help others when and where you can.
  • 10. As long as you are alive there is always hope.
  • 09. Nothing quenches your thirst better than water.
  • 08. Admit your mistakes and learn from them.
  • 07. Always tell the truth.
  • 06. Don’t expect others to respect you if you don’t show respect yourself.
  • 05. Every thing should be done in moderation.
  • 04. Always say “please” and “thank you.”
  • 03. You get what you pay for.
  • 02. Fear can be a good motivator.
  • 01. The love of a good woman is a very special thing.

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