The Eye of the Tiger

Do you ever feel as if you have no fight left within you? Living life in a disabled body, especially when that body breaks down is overwhelming. I have been luckier than most in my life. My independence has not been as limited as others who are disabled. However, the past few weeks has leftContinue reading “The Eye of the Tiger”

What is There to Fear?

If you read my last blog post you know I have been struggling physically the last few days. I thought things were looking up until I went for a follow up with primary care doctor today. The infection in my foot appeared to be getting better. However, upon closer examination the wound on my footContinue reading “What is There to Fear?”

Saturday Night Fever

One of the most difficult things about having spina bifida, at least for me, is the lack of sensation that I have below my knees. Along with this lack of sensation is also decreased circulation. Having no feeling in your feet can’t present various problems. The decreased citculation can magnify those problems. For instance, IContinue reading “Saturday Night Fever”

Progress?

Today marks the 30th anniversary of the passage of The Americans with Disabilities Act (ADA). This legislation gave equal rights to those with disabilities with respect to employment, transportation, public accommodations, government services, and telecommunications. I was 13 years old when the ADA became law. At that time I was too young to understand theContinue reading “Progress?”

Scars

Scars are ugly, at least that is what many people think. I would disagree. After having undergone dozens of surgeries, I have scars. I have them from the top of my head all the way down to my feet. While they are not things of beauty, they are reminders of healing. What once was tornContinue reading “Scars”

Brought To My Knees

I have been brought to my knees. I mean this in both a physical sense and in a spiritual sense. Nearly three weeks ago my back went out. As someone who has spina bifida, this can present some serious issues. I have been unable to walk normally, as the pain in my back has radiatedContinue reading “Brought To My Knees”

Not So Happy Little Accidents…

I hesitated at first to write about this experience because I feel as if it may be outside the boundaries of what is appropriate to share about myself. However, my intentions when I first started this blog were to provide a humorous perspective on what it means to be disabled. Some of the more challengingContinue reading “Not So Happy Little Accidents…”

Boot Heel Fever

If there is one thing that frustrates me the most about having spina bifida, it is the fact that I have to wear leg braces. It is often hard to find shoes that I like that will fit over my braces. It is especially difficult when the orthotist (the person who makes said braces) getsContinue reading “Boot Heel Fever”

2 + 2 = 4…or is it 5?

According to spinabifida.org “more than 10 million people worldwide have spina bifida.” Of those 10 million individuals, “approximately 90%” also have a disorder known as hydrocephalus. This disorder results in a disruption “in the flow of cerebrospinal fluid (CSF) through the pathways of the ventricles of the brain.” This abnormal flow of CSF “causes pressureContinue reading “2 + 2 = 4…or is it 5?”

The House Call

Growing up I received some of the best medical care that was available for people who were born with spina bifida. I was fortunate to live just a couple of hours west of Chicago, which was home to Children’s Memorial Hospital. If you have read some of my earlier posts, you might recall my fondnessContinue reading “The House Call”