100!

When I started writing this blog back in January of 2019, I wasn’t sure where it would lead. At first my goal was to focus on issues related to my disability. However, my life really isn’t defined by having spina bifida. Therefore, this blog has expanded to be a place where I can share my thoughts on current events, give insights on what living life with a disability is like, and just share humorus observations of the world around me. I hope you have enjoyed following me on this journey.

This particular post will be the 100th post that I have written. I thought in keeping with that, I’d create a list of 100 lessons that I have learned, observations that I’ve made, or opinions that I have formed. Every day there are new lessons to be learned and new experiences to be had. These are just a few of the things I have picked up along the way. Let me know if I have missed anything. Here is my list in no particular order.

100. Never take a hansom cab ride in New York City.
99. Never be afraid to try something new (except for that hansom cab ride in New York City).
98. Holding a grudge against anyone is pointless.
97. God will indeed give you more than you can handle at times.
96. Don’t ever give up. Things will get better. It might just take time.
95. Life is unfair.
94. Anxiety can make you feel like you need to do everything all at once. You actually don’t need to do this. Just slow down and take things one step at a time.
93. The smell of the air just before it rains is one of the best scents.
92. The smell of a baby’s head just after they have had a bath is THE best scent there is.
91. The love that a dog has for its master is one of the purest forms of love there is.
90. Losing someone that you love is one of the most painful things you can ever experience.
89. Working hard to achieve a goal is one of the greatest feelings that you will have.
88. Sitting outside in the winter in a place where there is very little, if any, light pollution and looking up at the stars on a clear night is something everyone should try at least once.
87. Going on a road trip with someone you love is a lot of fun.
86. Dorothy was right, “there is no place like home.“
85. Take time to pray every day.
84. Dirt tastes like dirt (yes, I have tried dirt before).
83. Beets taste like dirt.
82. Walnuts taste like dirt.
81. The taste of soap is not pleasant. (Yes, I have had my mouth washed out with soap. It was at church no less).
80. Cilantro tastes like soap.
79. Eating a bag of peanuts on a warm, summer day at baseball game is one if the most relaxing experiences there is.
78. Take time to listen to the stories that your grandparents tell. I am fortunate that I did. I will treasure these memories for as long as I live.
77. Learn about the things that have happened in the past. You can learn a lot from history.
76. You can never read enough books.
75. Learning to adapt to change is difficult, but it is well worth the effort.
74. Being a homeowner is both a blessing and a curse.
73. It pays to do things correctly the first time.
72. I’d rather have more time to do the things that I want to do in life than to make more money. Time is far more valuable than money.
71. There are still very kind people in the world. Many of them live in the U.K.
70. Listen to your parents. They know more than you do.
69. Do at least one thing you enjoy doing every day.
68. Never pray for patience. God just might answer your prayers in ways you don’t expect.
67. When working with others it is often best to let them speak first. You just might gain some new perspective.
66. Donuts are little bites of heaven.
65. Mashed potatoes are the best food ever!
64. Chick-fil-A is overrated.
63. Fountain Coke at McDonald’s is the best.
62. Hot McDonald’s french fries are the best.
61. The Blues Brothers is one of the best films ever made.
60. Somedays you just have to listen to the Beatles.
59. You will never get everyone to like you.
58. Pancakes made at home are better than you can get in any restaurant.
57. NASCAR is not a sport.
56. Everyone should make a trip to the ocean at least once.
55. Everyone should travel overseas. You will gain a new perspective on life.
54. There is nothing like a good night’s sleep.
53. Spending time in the mountains is one of the most peaceful things you can do.
52. Disney World is overrated.
51. Bacon tastes best when crispy.
50. Cats can indeed be needy (I live with two who are very needy).
49. Sunny days are the best kind of days.
48. Never have your eyes dilated on a sunny day.
47. You can’t properly eat Oreo cookies without a glass of milk.
46. Getting an unexpected package in the mail is better than gifts on Christmas Day.
45. No one has ever sang the National Anthem better than Whitney Houston.
44. No one’s instrumental version of the National Anthem has been better than Jimi Hendrix’s rendition from the Woodstock Festival in 1969.
43. September is the best month when it comes to weather, at least here in Illinois.
42. Rollercoasters are not fun!
41. There is no ceremony quite as somber as the “changing of the guard” at Arlington National Cemetery in Virginia.
40. Ken Burns knows how to make a documentary film better than anyone else. If baseball doesn’t start soon I might have to dive into his 23-hour epic on the sport.
39. Don’t ever try smoking.
38. Tell the people you love how you feel while you still can.
37. Sometimes you just need to eat a big, greasy, cheeseburger.
36. It is never too cold to eat ice cream.
35. Read to your kids when they are young.
34. Walter Payton is the best football player I ever saw play the game.
33. Hot dogs should never be eaten with ketchup.
32. Thanksgiving is the best holiday.
31. Christmas becomes less fun the older you get. However, I suspect this changes once you start having your own children.
30. One of the best sounds you can hear is a baby’s laugh.
29. Many of the best things in life are free.
28. Treat others the way you would like to be treated.
27. A soft answer often turns away wrath.
26. Sometimes it best just to remain silent.
25. Autumn is the best season.
24. Always apologize when you are wrong.
23. Michael Jordan was the best basketball player I have ever seen play the game.
22. Don’t argue about politics on social media.
21. Forgive others when they wrong you.
20. Don’t pour gasoline on a fire.
19. Voting for the lesser of the two evils still brings you evil.
18. Finish your work first then you can enjoy your play all the more.
17. You often get what you give.
16. Cynicism isn’t always a bad thing.
15. Always finish what you start.
14. Let your yes be yes and let your no be no.
13. Family is important.
12. Steak is best when cooked medium. Anything else and you cook the flavor out of it.
11. Help others when and where you can.
10. As long as you are alive there is always hope.
09. Nothing quenches your thirst better than water.
08. Admit your mistakes and learn from them.
07. Always tell the truth.
06. Don’t expect others to respect you if you don’t show respect yourself.
05. Every thing should be done in moderation.
04. Always say “please” and “thank you.”
03. You get what you pay for.
02. Fear can be a good motivator.
01. The love of a good woman is a very special thing.

July 13, 2020 0

Nowhere Man

If you’ve been reading my blog for any length of time you probably have noticed that I am a Beatles fan. I’ve enjoyed their music for quite some time. My favorite Beatle was John Lennon. I have always appreciated his wit, and I can relate to his cynicism. These two things combined made his songwriting something that speak me on a very personal level.

I often have a very cynical view of the world. I believe that things will turn out all right in the end. However, sometimes I just need to convince myself of that fact. In order to deal with a world that can seem like a rather dark place at times, I try to use wit and humor to lighten the mood. Sometimes all that you can do when life throws your a curveball is laugh. I feel as if I have had my fair share of curveballs.

One thing that I have had trouble dealing with recently is a sense of isolation. This is something that most, if not all, can relate to as we look forward to the world once again hanging out its “Welcome-Come On In!” sign. I just want to go to a public place without wearing a mask. However, I must say the Chicago Cubs mask that Amanda made for me is pretty cool, but I digress.

With warmer temperatures and sunshine here now, it is even more difficult to “social distance.” I want to be in the bleachers at Wrigley Field with a hot dog in one hand, and a cold drink in another. I want to hear the sound of the pipe organ between innings. Most of all, I just want to be able to travel again to the places that I love.

This week I have been perusing my “Facebook Memories” quite a bit. I’ve been able to look back on trips I have taken together with family and friends. Nearly a year ago Amanda and I were in Washington D.C. enjoying Memorial Day weekend. Eight years ago we were in New York City visiting the Statue of Liberty. Finally, my brother Shannon and I were in Alaska twenty years ago this month. May apparently has been a great month to travel. I long to have more adventures and to make more memories.

Until then I will remain a “Nowhere Man.” The opening lines to this John Lennon penned Beatles tune sum things up for me perfectly for now:

He’s a real nowhere man
Sitting in his nowhere land
Making all his nowhere plans for nobody

May 29, 2020 3

8-Track Flashback

One of the fondest memories that I have of my dad is riding around in his truck with him and my brothers. He had an 8-track player in his truck. It was through that 8-track player that I was introduced to much of the music that I still love today. My dad’s taste in music varied. He enjoyed everything from Motown to the Beatles to Southern Gospel.

As I write this I am listening to an old gospel song called, “Is That the Old Ship of Zion,” performed by the Southern Gospel group called the Kingsmen Quartet. When I hear this song I can’t help but think of my dad, as it was one of his favorites. So it is with many of the songs that I have in my iTunes library. For instance, I cannot help but think of those rides in my dad’s truck when I hear a song by Hall and Oates or Foreigner, as those were in heavy rotation during those trips.

It is because of my dad that I have a fondness for Motown as well. I love The Temptations, Smokey Robinson, Marvin Gaye, Stevie Wonder, and The Supremes. This music is timeless to me. It is some of the music that I have started to introduce Baby Boy to after we read at night. I can tell he enjoys music already.

As a student of history, I have always had a desire to go deeper and examine how things began. It is this curiosity that led me to explore the origins of the music I heard on those rides in my dad’s truck. Ultimately, that journey led me to discover the blues. There I found musicians like Robert Johnson, Muddy Waters, Howlin’ Wolf, Buddy Guy, and B.B. King. It was the music created by these men that gave rise to much of the music that I discovered as a teenager. This is the music that I still love today.

Jimi Hendrix, Eric Clapton, Jeff Beck, Pink Floyd, all were influenced by the blues. Music is still something that lifts my spirits, and helps me to escape the troubles of the day. One cannot help but feel better after listening to a song like “If I Fell” by the Beatles. In my opinion no group ever harmonized better than the Beatles. Plus, no other duo could write a song quite like Lennon and McCartney.

I thank my dad for instilling a love of music within me. I hope to pass that same love on to Baby Boy. I will be curious to see where it takes him. He might just introduce me to some new things. One thing is certain, I’ll never forget that 8-track player and the music it introduced me to all those years ago.

April 19, 2020 2

Take a Sad Song and Make it Better.

Adapting to change is usually a difficult process. We often like to stay in our comfort zone. That way we don’t have to take any unnecessary risks or encounter difficulties that might prove inconvenient for us. Personally, I have always been a person who is perfectly content to maintain the status quo. Perhaps, this is out of fear. I don’t always enjoy letting others into my inner sanctum. You could say I am like Superman and his Fortress of Solitude. However, I am not a “man of steel.” I have doubts, fears, and insecurities. I have let these hold me back from experiencing many of the things life has to offer. This was especially true when I was younger.

When I was a teenager, girls were my kryptonite. I was perfectly fine hiding behind the walls of my fortress. If I didn’t take any chances then there was no opportunity to get hurt. I approached many of my relationships like this as I grew into adulthood. I’d only let people in so far, never letting them see the real me. I think for a long time I wasn’t even sure who the “real me” was. However, as I reached my 20’s I began to feel like a change needed to occur. I was tired of hiding.

I’ve always enjoyed the music of Pink Floyd. As an angst-ridden teen I could relate to the lyrics of many of their songs. There is a line in a song from their album The Wall that seemed to fit my life perfectly. The name of the song is called “Waiting for the Worms.” The line is: “In perfect isolation here behind my wall.” That is how I often felt as a teen. I was putting walls up around myself so that I’d never have to take risks. Risks, after all, might lead to heartbreak. Therefore, The Wall became the soundtrack for my teenage years. With its themes of abandonment and isolation I felt it perfectly described who I was at the time.

However, no one can truly live their life in such a way and be happy. I realized this after about a year of counseling, which I went through in my early twenties. I had a counselor who helped me to see that it was okay to let others in to my life. The walls could come down. I no longer had to seek out “perfect isolation.” It was okay to be me.

With this new found freedom, I began to open up to new experiences. I even began to date. This is something that I thought I’d never do. For, I used to ask myself “who would want to date a man who walked with crutches, and had other physical challenges?” Fortunately, this was only a misconception. I did find that there were people that wanted to be my friend, and there were even ladies who wanted to date me. I even found one that said “yes” when I asked her to marry me!

I have been married to Amanda for 7 years now. There are times when I still want to hide behind some walls. However, I think we are all like that at times. Together, Amanda and I are about to break down a huge wall. We will soon be foster parents. As I type this tonight, we are getting bedrooms ready to welcome children who need love and support. We are both ready for this challenge.

In the coming days and weeks, bunk beds will be assembled, walls will be painted, and Amanda will pass her FBI background check, at least we hope! The next few months will be all about breaking down walls. I am sure there will be children who will come through our door feeling much the same way I did as a young person. I think maybe we’ll put The Wall away in the closet and pull out some Beatles music instead. After all, it is time to “take a sad song and make it better.” For those who missed that reference, stop reading this and go listen to the song “Hey Jude.” On second thought just stay right here, sit back and watch the video below.

November 10, 2019