Wild Turkey and a Bowling Ball!

I think God often brings people into my life as a way of teaching me things. For instance, I recently met an older gentleman who has lived a life fit for a screenplay. Jack, as I will call him, is nearly 80 years old. He served a few different tours in Vietnam. He also has lost most of his hearing. Communicating with him was difficult, however, it was time well spent.

Jack is a man whose life experiences could fill volumes. I enjoy meeting these types of people, as their stories are so often rich with historical insight and humor. Jack went to Vietnam in the early stages of the war. He stayed until the United States was firmly entrenched within the conflict. He was a Marine, and fiercely proud of that.

After returning from the war, Jack opened a barber shop and cut hair for nearly 50 years. He just recently retired. I would have enjoyed visiting his shop so that I could have heard more stories of his life. I’m not sure Jack was always an easy person with whom to get along. It sounds as if his relationship with his family was strained. This may be due to Jack’s years of substance abuse. He is a recovering alcoholic. Jack’s brother is also an alcoholic.

The way Jack described his brother was humorous to me at first, however the more I thought about it, the sadder it became. Jack said his brother could simply be described as having “a bottle of Wild Turkey in one hand and a bowling ball in the other.” This description makes me think Jack’s brother is not a very pleasant person with whom to spend time.

It also got me to thinking how others would describe me if they just had one sentence in which to do it. I am hoping I’d be known for something much more positive. Fortunately, I don’t drink Wild Turkey, and I am a horrible bowler.

Goodbye 2020!

The end of last year brought hope. Amanda and I welcomed a three-day old baby boy into our home. Since this time he has become a part of us. In two days this bright, smiling child turns 1 year old. We will have a party with family. There will be cake, smiles, laughter, and maybe a few presents.

It has been strange raising a baby during a time when the world is filled with such uncertainty. This year has had many ups and downs. However, despite all of this, life has gone on and everyone has remained relatively healthy. There is much for which to be thankful.

Amanda and I have great friends and a loving family. We have a baby who brings us so much happiness on a daily basis. It has been our great pleasure to become his parents. We feel fortunate to have been blessed with the responsibility of raising him and providing for his needs.

God has protected us through times of trial. This year has truly been a struggle at times. The isolation brought on by the pandemic has often been too much to handle. However, life is still good. I will be happy to see 2020 come to a close. I’ll carry the things I have learned this year into the next. One might think that the future looks bleak, and in a lot of ways it does. However, there is a light at the end of the tunnel. I am curious to see what the future holds. As we approach 2021, let us all treat each other with more love and understanding. Everyone has a burden they are carrying. Let’s make time to listen to others.

I recently had a friend reach out to me to share some things that were going on in his life. He expressed to me that he needed others to “do life with.” This is something we all need. The English poet, John Donne, writing in the 17th century, wrote that “no man is an island.” Hopefully, 2021 is a year we can reconnect with each other. Good riddance 2020!

Six Weeks

Yesterday was my last dose of antibiotics. This was cause for celebration. It has been a long six weeks of medication, home nursing visits, doctor’s appointments, and sleepless nights. There were times it seemed like it would never end.

However, my body has healed. My PICC line has been removed, and life is slowly getting back to normal. Now it is time to once again build up my strength. My body has become very weak, as I have been quite inactive. Working from home has not helped this situation. Despite this, I am thankful to have a good job. Likewise, I am thankful that my body has healed.

I am curious to see what the next few months will bring as we head into autumn. There is a lot to look forward to, especially with Baby Boy here. For instance, Halloween should be fun with a little one. Thanksgiving and Christmas will be extra special as well. Hopefully, 2021 will be a better year for us all. I know I am ready to say goodbye to 2020!

My parasitic PICC line. It felt like a worm slithering through my vein as it was removed from my arm.

Drip, Drip, Drip…

I seem to be living life one drip at a time these days. Four weeks in to being on IV antibiotics and progress is being made, despite the drip, drip, of time. The wound on my foot has healed, for the most part. However, there are still two weeks of antibiotics to go.

I am dreaming of the day when the PICC line will be pulled from my arm. If all goes as planned this should happen the week of September 21. After that I hope things will get back to normal.

In the time I have been down, Baby Boy has begun to crawl. This has presented some challenges, as I cannot always catch him before he gets his hands in to things where they don’t belong. For instance, he has sampled some cat food, explored the bathroom floor, and played with television remotes. I am hoping he hasn’t purchaed anything from Amazon while I wasn’t looking.

The next two weeks will drip, drip, drip on by and my left foot and my left arm will once again be fully operational. I can then be on full-time baby patrol every evening. I’m sure the cats will appreciate that. I know Amanda will, as she has been working overtime keeping our household running. Without her I’d be lost. She has been wife, mother, nurse, housekeeper, chauffeur, and friend all while holding down a full-time job.

Please Shut the Door Behind You

I wish someone could explain to me what sense it makes to wake someone up who is in the hospital every three hours to take their vitals. If someone is critically ill, yes, I can see keeping a close watch on their blood pressure, temperature, and pulse rate. However, for a patient who is stable, and has been since their admission then why the need? Rest to me seems as if it should take precedent over anything else.

If a body needs healing, rest seems to be one of the best ways to promote that. I get horrible sleep in the hospital. It is more like a series of cat naps I take at night. This is because I know that if I try to fall asleep for real, I’ll have someone in asking to check my blood pressure, my temperature, and my pulse rate. This is despite the fact all of those numbers have been consistent for days!

I’m a quiet person who generally doesn’t summon the nurse or an aide for anything, unless I need to use the bathroom. Then I ask for help getting to and from there. Once that is done I expect to climb back into bed and be left to my own devices. If I have my phone and iPad within reach that is all I need. I like my door to be shut and to not be bothered.

This seems to unnerve some nurses and aides. I am a low-maintenance patient who loves to be in the quiet of my own space. That is not to say I don’t appreciate their kindness and their helpfulness, but in all honesty, I’d rather just enjoy the solitude. Maybe in hopitals there needs to be a side of the floor for those who need the extra care and support, and a side for those who just want peace and quiet.

In reality, I am pretty certain none of this will ever change. however, if I am in a hospital to rest then let me do it. I know my body and it enjoys its rest. Let me sleep and I will be gone much quicker out of your care. Yes, I know I sound like an old man who is growling through clenched teeth for medical staff to “get off my lawn!” Nonetheless, I do appreciate what they do. They just need to do it more in someone else’s room. I am fine, I will be fine, and I know when I need to call for help.

What is There to Fear?

If you read my last blog post you know I have been struggling physically the last few days. I thought things were looking up until I went for a follow up with primary care doctor today. The infection in my foot appeared to be getting better. However, upon closer examination the wound on my foot had a sneaky, little hole that was leading down to my bone. Through this hole poured some of the infection. What this means is yet another surgery tomorrow.

As I have gotten older I have begun to question just how much more my body can withstand. I’ve had over 30 procedures done in the 43 years I have been alive. It seems there isn’t a part of my body that has been left unscathed by a surgeon’s scalpel. I have seen large chunks of flesh removed from my body, my head has been shaved bald, and I’ve had muscles removed from one part of my body and transferred to another spot.

I’ve had some great doctors. I have also had some fairly incompetent ones. The nurses, on the other hand, have all been terrific. They are the ones who really know what is happening. I’ll ask a nurse something before I ask any doctor. A nurse, even if they don’t know the answer, can usually do some investigative work and get you the information you need. Plus, they clean up all of the messes!

I don’t mind having surgery. It is nothing that scares me. I’m confident in the doctor who is performing the surgery, so I know I am in capable hands. There are great nurses around as well. Likewise, I know prayers are already being spoken for me. Therefore, it is in God’s hands. What is there to fear? I just hope they ask me what kind of music I want to listen to as I drift off to sleep!

P.S. I had my first test for COVID-19 today. It felt like someone shot onion juice up into my sinuses, as my nostrils begin to sting and my eyes began to water! After that I feel like I can face anything.

If I Could Be Like Mike

Last night I finished watching “The Last Dance.” This is a documentary miniseries co-produced by ESPN Films and Netflix. This 10-part series centers on the career of Michael Jordan. In particular, the film focuses on Jordan’s final season with the Chicago Bulls.

For those of you who may not know who Michael Jordan is, he was a professional basketball player who is considered by many to be the greatest to have ever played the game. He was a person that I idolized when I was younger. I was fortunate enough to meet him when I was 12 years old. This was a thrill of a lifetime.

Watching “The Last Dance” for me was a particular treat, as it brought back many of the memories that I have of watching the Chicago Bulls in the 1990’s. They were an exciting team to watch. I feel lucky to have seen them play live at the Chicago Stadium before it demolished in 1995. The stadium was aptly nicknamed “The Madhouse on Madison.” This is perhaps the loudest place I have ever been.

It held just a little over 18,000 people for basketball games, which is quite small compared to the stadiums of today. However, when the Bulls were playing the building shook as fans stomped their feet and roared with excitement. There were times when it seemed as if the place might just crumble into a heap as a result of the noise coming from the crowd. I relived some of this excitement as I watched “The Last Dance.” I also felt proud to be a fan once again.

Michael Jordan is human being. He has faults, as we all do. He has been criticized by some for his overly-competitive nature. It is true that he was cruel to some of his teammates and competitors. However, I appreciate the drive that he had. He sought perfection in everything that he did. This is something that I admire. It is a quality that I long to see in myself at times. I’d like to be driven enough to eat healthier, to exercise as I should, and to practice other habits that I know would improve my quality of life.

I am aware that it is unhealthy to compare yourself to others. However, I think we can look at others and learn from the examples they have set. Michael Jordan was focused on excellence in his professional life. He worked on improving his skills every day. This is something that I think we all can do. Jordan has not always been successful at everything he has tried. For instance, his foray into professional baseball lasted only a short time. Despite these failures, Michael Jordan never stopped striving to become better.

Despite his faults, Michael Jordan is someone that I look to as a hero. He played his sport to the best of his ability. Furthermore, he drove others to perform at their highest level. I find that inspiring.

Just a Little Vitreous Humor

This past Saturday my eyes started playing tricks on me. When I woke up I saw flashes of light in the corner of my left eye. These flashes were accompanied by floating specks and pin-point sized dots. Being the hypochondriac that I am, I thought perhaps I might be having a stroke. Despite this, I decided I’d wait to see if it would all just go away. Likewise, I consulted Google to see what my symptoms might mean.

I decided that I probably had a tear in my retina, or there was a chance that it was diabetic retinopathy. However, I tried to put these things out of my mind. I then spent the rest of the day on Saturday trying to rest my eyes as much as I could.

On Sunday, I woke up and the same flashes of light were there, as were the “floaters.” Again, I thought I’d wait another day to see if my symptoms would subside. However, by yesterday morning they had not. Well, the flashes of light had disappeared but the “floaters” were still present. This is when I decided I’d call my doctor. My doctor got me in almost right away.

Going to the doctor in the midst of a global pandemic is quite the experience. Obviously, you are required to wear a mask. After you fill out the paperwork they give you at reception, you are allowed to keep the pen. If I’d have known there was a free pen involved I’d have not hesitated for a second about scheduling an appointment. However, my favorite part of the day was the card I was handed before I sat down.

It looked like a flashcard that school children would use to practice their sight words. On the card was the word “dirty,” printed in nice block letters. I thought I smelled pretty good, but apparently not. Anyway, I was instructed to leave this card on my seat in the waiting room after I was called back for my exam. This was so the receptionist would be reminded to disinfect my seat.

Fortunately, nothing abnormal was detected during my exam. The doctor explained to me that the eye contains a jelly-like fluid called vitreous humor. This fluid fills the space between the lens and the retina in the eye. Apparently, as a person gets older the vitreous humour begins to liquify and shrink. The collagen and proteins that are present within the vitreous humor then become stringy and can begin to float around the eye. So, I basically found out I am becoming an old man who will see “floaters” in his eye for at least a little while.

Better still, I will be getting my first pair of bifocals in a few weeks. I am not sure how I feel about this. I am going to have a difficult time adjusting to them, I imagine. However, at least now I won’t have to take my glasses off to read things that are close to my face.

Hopefully, I won’t have to go to the doctor again anytime soon. Although, it might be a great way to start a new pen collection.

100!

When I started writing this blog back in January of 2019, I wasn’t sure where it would lead. At first my goal was to focus on issues related to my disability. However, my life really isn’t defined by having spina bifida. Therefore, this blog has expanded to be a place where I can share my thoughts on current events, give insights on what living life with a disability is like, and just share humorus observations of the world around me. I hope you have enjoyed following me on this journey.

This particular post will be the 100th post that I have written. I thought in keeping with that, I’d create a list of 100 lessons that I have learned, observations that I’ve made, or opinions that I have formed. Every day there are new lessons to be learned and new experiences to be had. These are just a few of the things I have picked up along the way. Let me know if I have missed anything. Here is my list in no particular order.

  • 100. Never take a hansom cab ride in New York City.
  • 99. Never be afraid to try something new (except for that hansom cab ride in New York City).
  • 98. Holding a grudge against anyone is pointless.
  • 97. God will indeed give you more than you can handle at times.
  • 96. Don’t ever give up. Things will get better. It might just take time.
  • 95. Life is unfair.
  • 94. Anxiety can make you feel like you need to do everything all at once. You actually don’t need to do this. Just slow down and take things one step at a time.
  • 93. The smell of the air just before it rains is one of the best scents.
  • 92. The smell of a baby’s head just after they have had a bath is THE best scent there is.
  • 91. The love that a dog has for its master is one of the purest forms of love there is.
  • 90. Losing someone that you love is one of the most painful things you can ever experience.
  • 89. Working hard to achieve a goal is one of the greatest feelings that you will have.
  • 88. Sitting outside in the winter in a place where there is very little, if any, light pollution and looking up at the stars on a clear night is something everyone should try at least once.
  • 87. Going on a road trip with someone you love is a lot of fun.
  • 86. Dorothy was right, “there is no place like home.“
  • 85. Take time to pray every day.
  • 84. Dirt tastes like dirt (yes, I have tried dirt before).
  • 83. Beets taste like dirt.
  • 82. Walnuts taste like dirt.
  • 81. The taste of soap is not pleasant. (Yes, I have had my mouth washed out with soap. It was at church no less).
  • 80. Cilantro tastes like soap.
  • 79. Eating a bag of peanuts on a warm, summer day at baseball game is one if the most relaxing experiences there is.
  • 78. Take time to listen to the stories that your grandparents tell. I am fortunate that I did. I will treasure these memories for as long as I live.
  • 77. Learn about the things that have happened in the past. You can learn a lot from history.
  • 76. You can never read enough books.
  • 75. Learning to adapt to change is difficult, but it is well worth the effort.
  • 74. Being a homeowner is both a blessing and a curse.
  • 73. It pays to do things correctly the first time.
  • 72. I’d rather have more time to do the things that I want to do in life than to make more money. Time is far more valuable than money.
  • 71. There are still very kind people in the world. Many of them live in the U.K.
  • 70. Listen to your parents. They know more than you do.
  • 69. Do at least one thing you enjoy doing every day.
  • 68. Never pray for patience. God just might answer your prayers in ways you don’t expect.
  • 67. When working with others it is often best to let them speak first. You just might gain some new perspective.
  • 66. Donuts are little bites of heaven.
  • 65. Mashed potatoes are the best food ever!
  • 64. Chick-fil-A is overrated.
  • 63. Fountain Coke at McDonald’s is the best.
  • 62. Hot McDonald’s french fries are the best.
  • 61. The Blues Brothers is one of the best films ever made.
  • 60. Somedays you just have to listen to the Beatles.
  • 59. You will never get everyone to like you.
  • 58. Pancakes made at home are better than you can get in any restaurant.
  • 57. NASCAR is not a sport.
  • 56. Everyone should make a trip to the ocean at least once.
  • 55. Everyone should travel overseas. You will gain a new perspective on life.
  • 54. There is nothing like a good night’s sleep.
  • 53. Spending time in the mountains is one of the most peaceful things you can do.
  • 52. Disney World is overrated.
  • 51. Bacon tastes best when crispy.
  • 50. Cats can indeed be needy (I live with two who are very needy).
  • 49. Sunny days are the best kind of days.
  • 48. Never have your eyes dilated on a sunny day.
  • 47. You can’t properly eat Oreo cookies without a glass of milk.
  • 46. Getting an unexpected package in the mail is better than gifts on Christmas Day.
  • 45. No one has ever sang the National Anthem better than Whitney Houston.
  • 44. No one’s instrumental version of the National Anthem has been better than Jimi Hendrix’s rendition from the Woodstock Festival in 1969.
  • 43. September is the best month when it comes to weather, at least here in Illinois.
  • 42. Rollercoasters are not fun!
  • 41. There is no ceremony quite as somber as the “changing of the guard” at Arlington National Cemetery in Virginia.
  • 40. Ken Burns knows how to make a documentary film better than anyone else. If baseball doesn’t start soon I might have to dive into his 23-hour epic on the sport.
  • 39. Don’t ever try smoking.
  • 38. Tell the people you love how you feel while you still can.
  • 37. Sometimes you just need to eat a big, greasy, cheeseburger.
  • 36. It is never too cold to eat ice cream.
  • 35. Read to your kids when they are young.
  • 34. Walter Payton is the best football player I ever saw play the game.
  • 33. Hot dogs should never be eaten with ketchup.
  • 32. Thanksgiving is the best holiday.
  • 31. Christmas becomes less fun the older you get. However, I suspect this changes once you start having your own children.
  • 30. One of the best sounds you can hear is a baby’s laugh.
  • 29. Many of the best things in life are free.
  • 28. Treat others the way you would like to be treated.
  • 27. A soft answer often turns away wrath.
  • 26. Sometimes it best just to remain silent.
  • 25. Autumn is the best season.
  • 24. Always apologize when you are wrong.
  • 23. Michael Jordan was the best basketball player I have ever seen play the game.
  • 22. Don’t argue about politics on social media.
  • 21. Forgive others when they wrong you.
  • 20. Don’t pour gasoline on a fire.
  • 19. Voting for the lesser of the two evils still brings you evil.
  • 18. Finish your work first then you can enjoy your play all the more.
  • 17. You often get what you give.
  • 16. Cynicism isn’t always a bad thing.
  • 15. Always finish what you start.
  • 14. Let your yes be yes and let your no be no.
  • 13. Family is important.
  • 12. Steak is best when cooked medium. Anything else and you cook the flavor out of it.
  • 11. Help others when and where you can.
  • 10. As long as you are alive there is always hope.
  • 09. Nothing quenches your thirst better than water.
  • 08. Admit your mistakes and learn from them.
  • 07. Always tell the truth.
  • 06. Don’t expect others to respect you if you don’t show respect yourself.
  • 05. Every thing should be done in moderation.
  • 04. Always say “please” and “thank you.”
  • 03. You get what you pay for.
  • 02. Fear can be a good motivator.
  • 01. The love of a good woman is a very special thing.

Saturdays

For as long as I can remember, Saturday has been my favorite day of the week. When I was a little boy I’d get up early and watch cartoons. I’d grab a pillow and a blanket and bed down on the living room floor and lay in front of the TV for hours. After cartoons would finish it was on to This Week in Baseball. I loved to get a behind the scenes look of my favorite players each week. Perhaps the best part of this show, however, was the host, Mel Allen.

Mel Allen was a sports broadcaster who was born in Alabama, so he spoke with a distinct Southern drawl. His voice was warm and very welcoming. It made Saturday mornings more cozy hearing him deliver highlights from around the world of baseball each week. I miss those carefree days. However, there is still nothing like a Saturday morning.

As I write this I am drinking some coffee and enjoying hearing the sounds around the house. Amanda’s parents are in town this weekend. So, grandma is holding Baby Boy as he giggles. Amanda and her dad are putting a puzzle together at the dining room table. I am in the kitchen feeling nostalgic for my 1980’s childhood.

I am 43 now, the cartoons I enjoyed as a kid are still available through various streaming services. However, I have not been able to find This Week in Baseball. I’d love to be able to relive some of those moments from my childhood with Mel Allen. I suppose there might be some episodes on YouTube. I’ll have to see.

Hopefully, by the end of this month baseball will have returned to the airwaves, as players are preparing to begin a shortened season. It looks as if quite a few players are opting not to play. Therefore, I guess we’ll just have to wait and see if things truly get underway.

I wonder what an episode of This Week in Baseball would look like today. I am sure players would be wearing masks as they were being interviewed. Highlights from the games would show nearly empty stadiums, as fans would not be allowed through the gates to watch the action in person. The voice of Mel Allen would not be there, as he has been gone since 2013. I am glad I have memories of those simpler times.

Life is still good. There are so many things to be thankful for each day. However, I truly miss some of the things that I once knew and loved. Lazy Saturday mornings are still here. They would just be a little sweeter if I could hear the voice of Mel Allen coming through the TV speakers, while clips of Ozzie Smith performing some of his “wizardry” played alongside Mel’s commentary. Those were the days.

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