Tag: foster care

Air

When I was in college I took a music appreciation class. I’ve always loved music. This class gave me an opportunity to explore various genres of music. For instance, we listened to quite a lot of classical music. Through this experience I gained an appreciation for the classical composer, Johann Sebastian Bach. One piece in particular of his that I enjoy is “Air on the G String.”

I heard this particular piece a couple of weeks ago. Since that day “air” is something that has taken on a quite a particular significance. That same day Our Little Fighter was airlifted from our local hospital to one over an hour away. He has a virus that led to an infection in his lung. Our house is just a couple of blocks from our local hospital. I heard the helicopter land and take off as it carried Our Little Fighter away into a world of uncertainty.

A brief time after the helicopter departed, an eagle appeared high in the sky. It circled our house a couple of times and then flew north. I was reminded of Isaiah 40:31, “But they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint” (ESV). These are words that I have had to keep coming back to, especially since progress seems to be slow.

This past week, while Amanda has been keeping watch over Our Little Fighter at the hospital, I have been home with Little Boy. He has been keeping me entertained. This morning he put his fork behind my back during breakfast, proceeded to sit back down, then with a puzzled grin asked me where his fork was. Usually we play this game where he hides behind me and then I ask where he has gone. He will peek around my shoulder and say, “here I am.” Apparently, he is building his comedy chops. I love every minute of it.

We will wait upon the Lord, as He is the source of our true strength. No matter where life leads, God is in control. We will keep trusting Him to provide strength in our weariness. He already is doing so through the humor of a little boy. I am just hoping there are no forks in my bed tonight.

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Laying My Burden Down

I am scared. Life is full of ups and downs. One moment things seem to be fine. Then the next everything changes. In these moments writing has always been very therapeutic for me. Therefore, I am going to let my fingers do the talking today.

As I mentioned in an earlier post, Amanda and I have taken in a new foster child. This baby was born with the mosaic form of trisomy 18, which means some of his cells have three copies of chromosome 18 while other cells have two copies of chromosome 18. This defect in the cells can lead to a host of developmental problems. No one really knows precisely in which cells the chromosomal abnormalities are present.

Currently, Our Little Fighter’s only visible issue is a cleft lip, which makes feeding a little more difficult. His breathing is also a bit labored. However, he sleeps, poops, and pees just like any other baby. What scares me is that the prognosis for babies born with trisomy 18 is very poor. Only between 10-15% of children with this condition live past their first birthday.

Life has thrown a lot at us since December of 2019. That is when we first became foster parents. Shortly after that the world seemed to come to a standstill due to the COVID-19 pandemic. Through this period my work life has changed a lot. The office where I work has lost two employees to retirement. One transferred to another office. Three others left to pursue other careers. Then, this past Tuesday I found out the manager of my office opted for early retirement and was gone the same day. Needless to say, there is a lot of uncertainty in life at the moment.

I wish I could say I knew how to deal with all of this better. Fortunately, Amanda and I have great support from family and friends. However, the uncertainty remains. We have had our first foster child for over 2.5 years now. To us he is our’s. I love him like I never knew that I could. He is still a ward of the state officially, which scares me more than anything else. Any day he could leave us and be given back to his birth parents.

I have to put all of this in God’s hands. Mine are not big enough to carry this load. He is faithful and just. My head says to trust Him and His will. However, my flesh is so very weak. My middle name is Thomas for good reason. I am filled with doubt on a daily basis.

There is an old spiritual song that has been covered by musicians across several genres of music. I believe I first became aware of the song via a recording done by Mississippi John Hurt, a blues musician who passed away in the mid 1960’s. The song is about laying down the hardships of life now and focusing on the good that is yet to come, especially in a spiritual sense.

This is something I still struggle with on a daily basis. Just when I go to “lay my burden down” I pick it right back up again. Hopefully, one of these days I’ll truly realize my hands are not big enough and I’ll “lay all of my my burdens down.” I do believe better days are ahead.

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A Love Letter…

Amanda and I will have been married ten years in August. I feel blessed to call her my wife for so many reasons. She is such a caring person who has taught me a lot about life. Perhaps, the most important thing I have learned is to love those who are broken.

I was born with spina bifida, which has left my body broken. Despite this Amanda loves me unconditionally. Through this I have learned to see beauty in brokeness. Amanda has an ability to see the potential in things that I would just toss aside. This has often led me to dip my toes in waters I would never have dared if left to my own devices. For instance, approximately five years ago we entered the world of foster care.

Amanda and I began our foster care journey by taking classes to become licensed foster parents. At this point I was very apprehensive. Having worked with troubled teens as a school counselor, I was unsure I wanted to open our home to children who were considered “broken” in some way. However, I learned that leaving my comfort zone was not a bad thing at all. I am so fortunate that I did, otherwise, I would have missed a wonderful opportunity.

When we decided to open our home to foster children we were told to not expect a baby. However, the first child that came to us was a three-day-old baby boy. He since has become our world. I never expected to love a foster child as much as I do Baby Boy. Even though he is not our flesh and blood, he is our’s nonetheless. I could not imagine life without him now.

When I was born my parents were not sure how long I’d live, or what quality of life I’d have. They simply brought me home, loved me, and raised me as best as they knew how. They, like Amanda, were willing to see past my brokeness and love me.

Two weeks ago Amanda and I were contacted and asked if we would be willing to take in another foster child. This time it is a six-week-old boy, who was born with Trisomy 18 or Edwards Syndrome. In short, this is a disorder that causes a disruption in the normal pattern of development. These abnormalities are often life-threatening even before the baby is born. Likewise, they severely limit the lifespan of those with this syndrome. We don’t know how long this child will live. However, this is a life that needs love. This “broken” baby needs a home where he will be showered with love. With much thought and prayer we have decided to open our hearts to this new life.

No one knows what will happen. However, we have love to give to this baby. We also have the love and support of family and friends. Whatever happens we have assurance from God that this is His plan for us and for this child. Once again we step outside of our comfort zone. However, we know that love can overcome brokeness.

One thing that God has taught me time and time again is that where He leads His grace provides. God’s grace is always sufficient.

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The “Escape Room”

Have you ever just wanted to disappear for a bit so that no one could find you? I often find myself trying to “escape” for a few minutes of serenity. However, I’ve discovered this is next to impossible with a toddler. For instance, a trip to the bathroom by myself is rare these days.

The bathroom used to be a good place to escape and catch a few minutes of peace. Now, I usually have company. Fortunately, Baby Boy shuts the door behind us. The only problem is, there are sometimes he doesn’t want to open it when our time in the “escape room” has come to an end. It truly becomes a situation where I truly am desperate to escape from the “escape room.”

Maybe next time we go in I’ll teach Baby Boy how to clean. He already knows how to use the TV remote, so why not put a mop in his hands and put him to work. Perhaps, I then can escape to the bedroom while he is not looking. I certainly can find some peace in there. Oh wait, the cats are always in the bedroom!

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Toilet Cucumbers

Having a toddler is a learning experience. Baby Boy is always on the go when he is awake. I love his sense of wonder and his willingness to try new things. However, I have learned to be cautious when he is around, especially when he tries to hand me things.

I am now the keeper of half-eaten bananas, empty applesauce pouches, and anything else he decides to hand me. Keeping my mouth closed when Baby Boy is around is a good idea. This is because he likes to share his food with me. I guess he thinks I am a baby bird that needs to be fed. For instance, yesterday, he was eating cucumbers. This is a vegetable of which I am not fond. However, he came running towards me with a slice of cucumber and jammed it into my mouth.

This is where I must tell you that Baby Boy has also recently discovered how much fun it is to play with the toilet seat in the bathroom. He loves to open and shut it. Likewise, if it is up he has been known to drop things in the toilet. It doesn’t matter what it is, he’ll dunk it and then retrieve it. We try to keep the bathroom door shut when he is on the prowl. However, he is now tall enough to open the door.

Yesterday, when he was snacking on cucumbers he made a trip into the bathroom. I was blissfully unaware of this, as I was getting ready to leave the house. As I noted above, he came running towards me with a slice of cucumber and jammed it into my mouth. I had no time to react! It went straight in and I swallowed it after a couple of quick chews. This is when I was informed by Amanda that Baby Boy had just come from the bathroom.

I am trying to avoid thoughts that it had been dipped in the toilet, but I don’t know for sure. All that I know is that I went to bed last night with a bad stomachache. Fortunately, it subsided by this morning. I guess I am immune to just about everything now. Who wouldn’t be after eating a toilet cucumber?

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Hello Again…

It has been quite some time since my last post. I just haven’t felt like writing for some reason. Perhaps, life has just been too hectic, or maybe I just have been a bit lazy. Sometimes, it is difficult to just stop and take stock of the things going on around you.

Life can seem fairly monotonous. Working from home, as I have been doing for over a year, has added to this feeling. Things seem to be slowy getting back to “normal.” I have returned to my office a few days a week. This has brought back some much needed structure to my life. Staying home everyday to work while I am in my pajamas didn’t seem to give me much of a purpose.

A lot has changed within the last year. Baby Boy is now walking and saying a few words, such as “dad.” Being a dad is such a wonderful experience. I have learned a lot about myself. In addition, I think I have learned the entire catalog of “Wiggles” songs. YouTube and Netflix come in handy when you are quarantined.

Amanda and I have been blessed with so much good. Despite, challenges related to health, 2020 was a very prosperous year. It is hard to believe that we are almost halfway through 2021. God has been good to us, even when we have not taken notice.

I look forward to seeing what the rest of the year holds. We will be taking a family vacation to Florida in June. I am excited to see Baby Boy play on the beach. I’m wondering what his reaction will be when he first sees the Gulf of Mexico. I’m sure we will build some sandcastles. Well, I’ll build and he will sit on them halfway through their construction.

Looking at life through the eyes of a little one has given me a new perspective. Everything is new and exciting. Nothing is left untouched. Everything has to be tasted, even cat food. Maybe life is not so monotonous after all. How can it be when every day is a new experience?

3

Huh, What Was That?

Amanda and I have spent the last hour whispering to each other. No, they haven’t been the whispers of sweet nothings. They have been the whispers of weary foster parents. You see Baby Boy has been asleep for the last few hours. We have been trying to stretch out his feeding times. When he is hungry he lets us know it by screaming at the top of his lungs.

Therefore, we have eaten dinner tonight in whispered conversation. This is a miracle in and of itself because we both have problems hearing when we are using our normal speaking voices. We have had conversations about the day’s events. Likewise, we have even whispered to each other about the movie Top Gun.

We have been trying to recall the names of the main characters. We have recalled that there was a “Goose” and a “Maverick,” but we don’t recall any of the others. If you do, drop me a line in the comments below.

Really, the only thing I have wanted to do for the last hour is break out into song, particularly the theme song to Top Gun. Kenny Loggins wrote some great theme songs to movies of the 80’s.

I guess I’ll just have to hum them silently to myself until Baby Boy wakes up. Then the real fun can begin. It will be a bottle for Baby Boy while I sing “Highway to the Danger Zone” to him. What is your favorite Kenny Loggins theme song?

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Paint Your Pets and Other Love Stories

Yesterday I met the love of my life. Well, it only seems like yesterday. However, it was actually 10 years ago yesterday. Amanda and I met for the first time on February 13, 2010. She was, and still is, a St. Louis girl. We were introduced through my cousin Brad, who was Amanda’s pastor at the time.

Our relationship began through late-night chats on Facebook, and then progressed to nightly phone calls that would last for several hours at a time. About a month after phone calls, texts, and Facebook messages we decided to meet face-to-face.

I decided I would travel to St. Louis from my home in Sterling, Illinois. It is approximately a 4-hour drive, so I had a long time to think about what our first meeting would be like. Would Amanda run and hide when she saw me for the first time? Would I be so nervous I would be unable to speak? These are some of the things that were racing through my mind as the miles began to melt away.

After a few hours I arrived at my cousin Brad’s house. This is where Amanda and I would meet for the first time. After settling in Amanda arrived at the door. Fortunately, she did not run away when she saw me. However, she thought about it as she heard me creak my way across the floor. I’ll never find work as a ninja, as my crutches squeak too much as I walk.

I think it helped that Amanda and I had spoken on the phone quite a bit before meeting for the first time, as it helped to make face-to-face conversation flow more effortlessly. Amanda and I had an easy time getting to know each other as we had lunch. We then went to the art museum, stopped for a cupcake at The Cup, a little shop that makes the best cupcakes ever! We then ended the night with The King’s Speech, a movie that we have since adopted as “our movie.” The next day we spent some time at the zoo. Simply put, it was a perfect weekend.

Amanda and I spent the next several months getting to know each other. I then asked her to marry me. Fortunately, she said yes, and we tied the knot on August 11, 2012. About a week later I started a new job in Northen Illinois and Amanda returned to St. Louis. For the first few months of our marriage Amanda and I only saw each other on the weekends. This was a very difficult situation, However, it only lasted until October when Amanda moved north to join me. In December 2012, we purchased our house and have added two cats to our lives since.

Amanda and I enjoyed being with each other that very first day, and we still enjoy being together. Today is Valentine’s Day, but we did not exchange gifts. However, we were together. That has been enough and will always be enough for each of us.

This morning we took a painting class together. We each painted a portrait of our cats, Dot and Cat. I chose Dot, and Amanda painted Cat. You can see the results below. I think I’ll hold on to my day job, as an artist I will never be.

Learning to live with another person was an adjustment for the both of us. I like organization. Amanda enjoys spreading her things throughout the house. This isn’t always easy for me. However, my stubborness is not something she always enjoys about me either. However, I can still say that Amanda is easy to be with. We laugh and we cry together. However, we are always together.

Being one has helped us adapt to our newest challenge, foster care. Since December 29th, we have been the proud foster parents of a sweet baby boy. He has transformed our lives. Sleep is hard to come by these days, but love is always there, even amongst the frustration of poopy diapers and midnight feedings.

We are now three, plus two cats. Love is never in short supply in our house. We are together and that is enough for all of us. Material things are good to have, and we have been blessed with far more than we deserve. However, time is the most important thing. Time is what allows us to create memories. Ten years of memories has made me a rich man. I am rich because I have a woman who loves me despite my faults.

Dot looks like a cross between a fox and an owl. Cat on the hand looks pretty good. Amanda is clearly the one with more artistic talent.

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Hopes

Baby Boy is a month old today. He is growing and becoming more aware of his surroundings every day. He is still ours and it is fun to see him grow out of clothes that fit him just a few weeks ago. Clothes he was once “swimming in” fit him just perfectly now. He is such a long, little boy. He uses those long legs to his advantage during a diaper change.

It is still difficult to imagine that one day he may be taken from us. This realization becomes harder to accept with each passing day. Amanda and I are his parents. We feed him, we clothe him, and we love him like he is our own.

Baby Boy and I have some good weekend “chats” as he lays on my chest in the morning. Of course, I am the one doing all of the talking. He just coos, grunts, and puckers his lips as he listens. I hope we can continue these “chats” for quite some time, as they help me relieve stresses of the week. Baby Boy is a good listener.

In those quiet moments of the morning he and I sometimes listen to music. He will be a Beatles fan some day, he just doesn’t know it yet. I think I’ll wait to introduce him to other favorites of mine later. Listening to Jimi Hendrix in the morning may not be as calming as the acoustic renderings of John, Paul, George, and Ringo.

Hopefully, Baby Boy is still here once baseball begins. There would be nothing better than introducing him to a game that I love. While I am not holding out much hope for the Cubs this coming season, it is always a joy to see Wrigley Field on the television. It would be a thrill to be able to take him to his first game there. The sights, sounds, and smells would have us both enthralled.

Amanda and I still have no idea how long Baby Boy will be with us. It could be a few days, a month, a year, or even longer. In the month that he has been, he has already left his fingerprints on our hearts. Our hope is that he is ours for a long time to come, but we know that may not be the case. In the meantime, he is ours to love, to teach, and to guide. God give us the strength to do all of those things.

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Baby Boy

It is just past 2:00 a.m. as I write this. My thoughts cannot help but turn to how infuriating life can be at times. It is simply unfair. I just got done feeding Baby Boy. That is what I will call our foster child, as I will never divulge his name on this blog.

I am angry with this precious child’s biological parents. They are missing out on seeing him develop and grow. Amanda and I have had Baby Boy for nearly two weeks. In that time he has become more aware of his surroundings, he has begun to show pieces of his personality, and he has brought us happiness.

As I look into this baby’s beautiful eyes it infuriates me that there are people who seem to have no struggle at all bearing children. Amanda and I are unable to have a baby of our own. So, why is it so easy for people who seemingly couldn’t care less about the children they bring into this world? It is unfair! It is painful to know that baby boy may go back to parents who lack the ability to provide the things that he needs. We want to be those people in his life.

In the time we have had this child, we have grown to love him as if he was our flesh and blood. He is a sweet baby who has given us a desire to learn all that we can to be the best parents for him, even if it is just for a short time.

It is so difficult to wish for Baby Boy to be reunited with his parents. We don’t know them, but it is heartbreaking to think that this child whom we love will be given back to parents who may not give him the same love and support he needs to grow into a healthy adult. Life is unfair, especially for this little boy who needs two parents to raise him in a loving, caring environment.

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