Hopes

Baby Boy is a month old today. He is growing and becoming more aware of his surroundings every day. He is still ours and it is fun to see him grow out of clothes that fit him just a few weeks ago. Clothes he was once “swimming in” fit him just perfectly now. He is such a long, little boy. He uses those long legs to his advantage during a diaper change.

It is still difficult to imagine that one day he may be taken from us. This realization becomes harder to accept with each passing day. Amanda and I are his parents. We feed him, we clothe him, and we love him like he is our own.

Baby Boy and I have some good weekend “chats” as he lays on my chest in the morning. Of course, I am the one doing all of the talking. He just coos, grunts, and puckers his lips as he listens. I hope we can continue these “chats” for quite some time, as they help me relieve stresses of the week. Baby Boy is a good listener.

In those quiet moments of the morning he and I sometimes listen to music. He will be a Beatles fan some day, he just doesn’t know it yet. I think I’ll wait to introduce him to other favorites of mine later. Listening to Jimi Hendrix in the morning may not be as calming as the acoustic renderings of John, Paul, George, and Ringo.

Hopefully, Baby Boy is still here once baseball begins. There would be nothing better than introducing him to a game that I love. While I am not holding out much hope for the Cubs this coming season, it is always a joy to see Wrigley Field on the television. It would be a thrill to be able to take him to his first game there. The sights, sounds, and smells would have us both enthralled.

Amanda and I still have no idea how long Baby Boy will be with us. It could be a few days, a month, a year, or even longer. In the month that he has been, he has already left his fingerprints on our hearts. Our hope is that he is ours for a long time to come, but we know that may not be the case. In the meantime, he is ours to love, to teach, and to guide. God give us the strength to do all of those things.

Published by rtb77

I am a 43 year old male who was born with spina bifida and hydrocephalus. I have been married to my incredible wife Amanda for 7 years. We live in Illinois and both work in government jobs. I enjoy reading, writing, and watching Chicago Cubs baseball. I also enjoy the absurdity that daily life often brings, especially to those with disabilities. I try to see the humor in these situations. If you are offended by the use of the word “crippled” in the title of this blog please read the first post. I don’t like the word crippled and have never considered myself as such. Furthermore, I have never wanted to stand out from others. However, my intent is to show how humor has helped me deal with the hardship of disability. Likewise, I want to show others how full a life one can lead, even if you happen to be disabled. The use of the word “crippled” for the title is meant to be a bit of irony.

One thought on “Hopes

  1. Ryan, I’m continuing to pray for you, Amanda, and Baby Boy. I rejoice with you all, and I’m proud of you And Amanda for opening your hearts. Love and Blessings to you….

    Liked by 1 person

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